Our Story. Part II.

This second part of the story has been hard for me to come to terms with in writing. I've been setting time aside to write this but always come up with some other excuse not to do it. You have to be in the right kind of emotional place to write something like this. I want to be open and share all the details. Details that I know many of you have wanted to know but have felt uncomfortable to ask. I appreciate your sensitivity. I very rarely have to go too in depth these days. It seems as if we've crossed some sort of line that in people's minds, it's been long enough since we lost her that it's not a regular topic to be discussed anymore. Which, in a way, is nice to step away from that overwhelming emotional place, but, I also feel like she's been a little forgotten, which I'm sure is not the case. It's just such an awkward, tender place. Who really knows the appropriate way to handle such things? Not me. If someone close to me lost their child tomorrow I truly wouldn't have any words for them. I'd just embrace them and cry with them.

With that being said, this is the part of the story where things really start to go downhill.

January 30th, 9:30 am. Andy and I go in for our 35 week check-up. We go through the motions of the appointment. Our OB, Dr. Ryan Jones, sits there for 5 minutes and tells us everything is looking great and that we should be good to go if we didn't have any other questions. The thought creeps into my mind that I should mention to him that I've been extremely itchy all over my body. I was hesitant to ask because I've been told that your skin can become very itchy while pregnant. But this seemed different. My face, arms, legs, feet and hands were constantly itching. I felt like I was going crazy but I didn't want to bother Dr. Jones witch such a silly question. I had already had so many scares or concerns that I was made to feel silly for. I had made up my mind that I was not going to be "that pregnant lady" that called the doctor's office 20 times a day with questions or concerns and that I was going to be the "chill first time pregnant lady." So, at the last second as Dr. Jones was about to walk out the door I asked him if being itchy all over my body was normal. He asked me if I was specifically itchy on my feet and the palms of my hands. I said, "YES!" He then told me I probably had bile acid build up in my blood and that I needed to get a blood test done. That was it. He was out the door without any real explanation as to what bile acids were or how they got in my blood or even how serious this actually was or why it was serious.

Two days later I have my first baby shower with family and family friends. I was beyond excited that it was actually my turn for one of these things. So many wonderful women showed up to share their love and support for my little family. My mom, mother-in-law and a few other family members did so much to make Indira and I feel special. I went home with a ton of stuff, excited to show Andy and get it all organized.

The next day, after church, Andy and I finally head up to American Fork Canyon to take a few "maternity shots" that I had been begging Andy to do for me for a while. It was so snowy and beautiful and Andy took the most beautiful photos. I was so happy to be outside in the snow with he and little Indi documenting this amazing time for us. The pictures turned out better than I could've hoped. It was so fun to have Andy take the photos and see how he sees me through the lens. At this point, I remember having the blood test in the back of my mind but I felt that it would be ok.

Andy and my dad gave me a blessing that night.

Later, after everything, Andy would admit that when he sat down from that blessing, he had an overwhelming feeling that my pregnancy was not going to end well...

Monday morning rolls around and my family and I have had enough time to research "bile acids" and what it could mean for myself and Indira and it's not very good stuff. Dr. Jones told me he'd be calling me to give me the results so I wait and I wait all that morning. Around 10:30am I finally call and leave a message for the nurse to call me back with the results. Two hours later I call again with another message. a few hours later the nurse finally calls me back and this is what she says, "Hi Neena, I'm calling in regards to your message with your blood test results. It looks like you have cholestasis. Your blood levels are at a 47 and normal levels are anything below a 20. Dr. Jones is hoping to get two more weeks out of ya." My heart begins to pound. Me: "What do you mean two more weeks out of me?" Nurse: "Well, with cholestasis, the risk of a stillbirth goes up once you turn 37 weeks. So, Dr. Jones wants your baby's lungs to mature a little more and then we'll see how you're doing at your next appointment. He is also going to call in a medication for you that should help with the itching." (My next appointment was scheduled for two days before I became 37 weeks pregnant. I was 35 weeks and two days at this point. They weren't planning on doing any monitoring or any other explaining until I was two days away from being very high risk at losing my baby.) I started to cry and freak a little. The thought that in two weeks time from then I could be having my baby early freaked me out a little. I wasn't mentally and emotionally prepared for that. Then the conversation ended because I was dumbfounded and didn't know what else to say or do. She didn't give me any explanation as to what was really going on. She just told me I had Intrahepatic Cholestasis of Pregnancy and that they'd see me in two weeks. 20 minutes later she calls me back and tells me it's very important for me to monitor my baby's movement 10 movements every two hours. Indira was such an active baby that I didn't have to count out 10 specific movements every two hours. So I felt confident in that aspect.

(To explain what cholestasis is, basically, it only happens when pregnant. My liver started to malfunction and my bile wasn't being processed properly so it was starting to back up into my blood stream, which for some reason is very dangerous for a baby. When the bile backs up into your blood the main symptom is itchiness all over your body and especially your feet and palms of your hands. There's no cure for it. There's no way to get your liver to start functioning properly. It just goes back to normal after birth. The only thing they can do for you is put you on a medication that is supposed to lessen the itchiness.)

I went home nervous and excited all at the same time. The nurse seemed so nonchalant about the whole thing, I thought for sure that if it was as serious as I thought it was, that they'd be bringing me in to review everything with me and monitor me. I call Andy and tell him the results. He's calm but I can tell he's concerned. He asks me if I feel ok with what the nurse said and I honestly didn't have an answer for him. So, I call my dad. He's had so many medical issues that he always seems to have the right answer as to what I should do. He says he's been doing a lot of research and has found that anyone over a 20 in a blood test that tests positive for cholestasis usually goes in for immediate monitoring and on occasion is sent straight to labor and delivery with a result similar to mine. I was confused that my doctor hadn't recommended anything besides the meds.

The next day I call at exactly 8am to leave a message to demand a non stress test because that seems to be standard procedure from what we'd been researching on the internet. About an hour later I get a call from the nurse again. This is what she says, Nurse: "So, I told Dr. Jones about you wanting to have a non-stress test and he said that if that's something you want to do we can defnitely get you scheduled for it." Me: "Yes, it is absolutely something that I want. I've been researching on the internet and everything states that it's standard procedure to go in for one immediately." Nurse: "Oooooh, the internet... You never know what you're going to get on there." Me: "Well, I wasn't given any information on what was really going on with me so we had to go look it up." Nurse: "Ok, so when would you like to come in?" Me: "Immediately." So she schedules me for that afternoon. Andy wasn't able to come so my Dad made sure to come with me.

When we show up to the office, I'm feeling pretty nervous because Indira had been very slow in her movements for the first time ever. I hadn't felt very much in the last hour or so which was very uncommon for her. As we sit in the waiting room, I can see the door to the room where they do the non-stress tests. I can hear a test being administered. The heart rate of the baby sounds so steady and loud from where I sit. I was hoping mine would sound the same. Sure enough, it did. Indi's heart started blaring through the monitor the instant it was placed on my belly. The nurse left my dad and I in the room and said that it needed to monitor her heart rate for about 20 minutes. About five minutes after she left the room, we heard Indi's heart rate drop dramatically and then sky rocket to way higher than what was average. My dad and I looked at each other with concern. It happened a few more times before the nurse came back in. She took the strips that printed out of the monitor to Dr. Jones to get his opinions. She said that those dramatic drops and then spikes were called decelerations and normally weren't anything to cause a panic but that it must be reviewed by the doctor.

She returned a few minutes later and explained that we needed to go next door the the hospital to get another test on Indira called a biophysical profile. This kind of test monitored a few more things other than just her heart rate.

My dad and I walked over to the hospital and were helped into a room with an ultrasound. The tech was nice enough and explained that a biophysical profile monitored the baby in four categories. Each category was scored with two points. If the baby doesn't pass in one category, it wouldn't get any points at all in that category. So a high score would be 8/8. The four categories monitor heart rate, muscle tone, movement, and breathing. It's a timed test and if the tech can't get a score for one of the categories in 30 minutes the baby receives a 0 in that category. He said some bpp's are done in five minutes because he's able to see all four categories in the baby immediately without poking, proding, or waiting for the baby. Other tests take a full 30 minutes and he only sees one or two of the categories then the baby fails the test. The mother is then sent straight to labor and delivery.

If we're gonna get down to the nitty gritty about how Indira's bpp went, technically she received a 4/8 but the tech passed her at a 6/8 with a few minutes to spare in the 30 minutes. In his words, "did you feel that?" Me: "Uh, i think so." (I barely felt anything. I couldn't completely tell if it was Indi moving or him pushing on my abdomen.) Tech: "Ok, I'm gonna call it good. So, I'm gonna give her a 6/8 (she failed on one aspect completely) and go give your OB a call. To be honest, some doctors will send you straight to labor and delivery with these results and some will send you home." And with that he left the room. I look at my dad with shock in my eyes at the thought in my head that he could walk back in that door and tell me that they're sending me up two floors to get induced and this little babe could be in my arms by tonight... But, he doesn't do that. He walks back in and says Dr. Jones felt good to send me home.

As my dad drives me home I couldn't shake the thought racing through my mind that if Indira is living in a poisoned environment inside of me, that she's better off on the outside of me than on the inside. I felt so powerfully that she needed to come out. A feeling that cannot be denied as motherly instinct.

The next day, Wednesday, February 5th, the worst day of my life...

Our story. Part I

I've sat down several times to start writing this, but always find myself staring at a blank computer screen. Even now I can't seem to find the words to write these first few sentences. I type and then erase, type and erase.

I guess I'll start from the very beginning...

We found out we were pregnant August of last year. We had made the decision that it was time to start trying to get pregnant last spring when my gastroenterologist felt that I was completely in remission from my Crohn's Disease. Two and a half months after the go-ahead, life began to form within my belly.

 It took us almost 9 weeks to actually figure out we were pregnant. I suppose I knew that I was pregnant but was afraid that I might be getting my hopes up and that it wouldn't actually be true. Many people have wondered, after I explain to them that we didn't know we were pregnant for so long, how I didn't know since I most likely was not having my period. Well, to put it bluntly, my periods have always been messed up. I can go weeks at a time spotting blood with a few days in between starting my period again. At this point I had been spotting for some time so I just thought it was normal. I finally had a friend convince me that I was most likely pregnant. So, I stopped at the store on the way home from working on a wedding and purchased two pregnancy tests. Andy was out of town on a climbing trip and got home late on a Sunday evening. So we waited until the next morning for me to take the test. I took the test and then sat on Andy's lap with the stick upside down in my hand. We waited five minutes and then flipped it over. Sure enough, the double lines were there. We looked at each other and had no words. But there was a general feeling between the two of us that we knew our lives were about to change dramatically.

This little babe would be the first grandchild for both my parents and Andy's parents and the excitement and anticipation were indescribable for both sides.

We had our first ultrasound a few days later since the spotting was a cause for concern. The ultrasound indeed proved that there was a little one inside of me and also that my placenta was detaching from the wall of my uterus which was causing hemorrhaging therefore explaining the spotting I had been experiencing. The doctor advised me to immediately go on pelvic rest. Meaning, no exercising, no sex, and no lifting anything for fear of my placenta detaching even more and causing a miscarriage.

Somehow I was able to avoid a miscarriage and the spotting went away for a time. It occasionally came back but would eventually go away completely once I started my third trimester.

At 17 weeks we did an early gender check and found out that we would be welcoming a sweet little baby girl into our lives. For both of our families, boys have seemed to dominate so to welcome a little girl was quite exciting. My hopes and dreams for a child began to become more real and detailed as I thought of this girl and what her life would be like. My most prominent visions were of Andy and watching him dote and love on her unconditionally. I dreamt of seeing her tiny body asleep on his chest while he napped too. I dreamt of watching him soothe her and change her diaper. To see the adoration in his eyes for this special little girl was what I looked forward to most.

We were worried about my being pregnant with the detachment of the placenta but we were also worried about the fact that having Crohn's, whether or not I was in remission, put me at high risk simply because of the medications I needed to be on to keep my disease in remission. My meds were considered category C, meaning, there have not been any tests done on pregnant women with these medications but the risk of going off the medications while pregnant are greater to the mother and baby than to stay on them. In other words, if I am in remission because of the combination of meds that I'm on, it's safer to stay on them then to go off of them and risk having a flare up while pregnant.
We asked our doctor if we needed to consult with a Maternal Fetal Medicine doctor. He said he thought MFM's had their time and place but tended to scare his patients and didn't think I needed to see one. So we trusted him and went along with it.

My pregnancy wasn't the easiest pregnancy in the world, I'm assuming. But, it also wasn't the hardest. I had my time of being sick and nauseated. That came and went pretty quickly. The exhaustion was normal and so were the aches. However, there were a few times that were cause for more concern than usual and I was sent to the emergency room twice, only to come out of it with just a scare and no real problems. Before I even got pregnant, I always thought pregnancy was going to be very difficult for me and was fairly shocked that things were going as "normal" as we thought they were.

What a rude awakening we were about to have...    

trying to play catch up

holy moly.... life is crazy.

 it's starting to calm down a bit, obviously, my wedding is over, 

but, starting a new life with someone is pretty crazy in itself! 

i really don't even know how to begin to try and recap! 

so, i think i am going to just basically list my life off for the past month 

and show a few pics from each event! 

(p.s. they might not be in perfect chronological order but deal with it.)
and be prepared for  this to be long... but it's mostly photos!

with the wedding around the corner, i didn't get to do much climbing the couple of months before but i did get to go out with andy and his friend austin for my first time trad climbing!

since andy's older brother got married a few weeks before us, andy's mom threw jessie and i a combined shower. it was awesome to finally meet some of andy's family and to see old friends! i scored on gifts and a combined shower is the way to go!
 that way not everyone's eyes are ALWAYS on you! and you get double the gifts!... ha ha!

andy's older brother jeff got married to jessie!

i am so blessed. i got to have another shower with family, close friends, new friends and old friends. these showers blew me away with people showing their love and support. it was such a crazy feeling to be having my own bridal shower! i've been to so many showers and now they were finally for me! CRAZY TOWN!

dirty dash 2011!!!
our team name = the dirty staches

lotoja 2011

andy raced in the lotoja again this year... making it his 6th time completely the whole 206 miles for logan, utah to jackson, wyoming. hence the very clever name "lo"= logan "to" "ja"= jackson. i hope that just made sense because reading back now it doesn't really look like anything meaningful. oh well...

anyway, andy is pretty much a machine. he and everyone else who attempts this race blows my mind. I know the tour de france is a much longer, grueling race but at least they break it up into different stages on different days. the lotoja is one day! covering 3 states in one day is crazy to me. 

people ask me if i have any desire to ride like andy and to race in the lotoja and before they can even finish their sentence i give them a solid, resounding, "NO."

I choose not to put myself in such pain and misery thank you very much. 

andy, however, does choose to inflict said pain on himself and although i don't like seeing him suffer, i do like to tag along and be his support crew during the race! 

andy came in at a final time of 09:37:52.713... 11 minutes slower than his time last year. 

andy was pretty bummed to be slower than his time last year, but i have to keep reminding him that he did next to no training and racing compared to last summer and he still only came out 11 minutes slower! 

so if you see him, please tell him he's crazy and that 11 minutes slower is still actually insanely good! 

he kept up with the pack and didn't quit. that's all that matters.

early, early, early morning start

i will admit that i do like this accidental photo 

support crews at feed zones

this was the unofficial "andy support crew shoe"

my first multi-pitch

for some reason when i plug my phone in at night to get charged, it doesn't allow it to vibrate or ring when i have incoming calls or texts. i have tried understanding this and fixing it, but to no avail. 

a few weeks ago it was my day off and i didn't turn my alarm on because i wanted a most deserved morning to sleep in. i had stayed up REALLY late with my roommates the night before just chattin' away so when morning time came i sorta kinda forgot andy had wanted to go climbing and i had ALL of his gear in the back of my car! i was just a sleepin' away and he called and called and called and texted a me a million times trying to either get me up to come or to at least get me up to get his stuff out of my car because several people were waiting him and us to head up to rock canyon to attack another multi-pitch called cosmic space dust lasers.

he came to my house and pounded on my door a lot, but being a little tired i barely heard the pounding in the back of my little dreams. finally it hit me that that pounding was going on for a long time and i figured one of my roommates would get it but they didn't. 

so i finally comprehended that someone really wanted in. i flew out of bed like a crazy person and ran downstairs in a mess. 

andy and parker were standing there a little frustrated from trying to get me up and not being successful. 

poor guys... i didn't blame them. i hate when i try to get a hold of someone and i know they have their phone and they just don't notice their phone is exploding with my name on it and they're just too oblivious to notice!  so frustrating! 

i was so tired but i decided to throw some real clothes on and run out the door with them. 

and boy am i glad i did! i did my first multi-pitch and it was AWESOME! 

we met up with blake nyman and jeff larson who did a little multi right next to us.

 i love how many little jewels rock canyon has to offer. too bad it's soooooo busy most days!